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UPDATED: XP Family Support Group Fundraiser with
Legal Addiction Band and Buenos Aires Grill
July 21, 2018 @ 7:00 pm - 10:00 pm
UPDATE: Join Legal Addiction for classic rock and lots of fun as we benefit the XP Family Support Group! Legal Addiction will play from 6:00 – 9:00 PM! Buenos Aires Grill will serve from 5:30 – 8:30 pm. Dreaming Dog Brewery and Buenos Aires Grill are donating $1.00 from each sale to this fund raising effort for the XP Family Support Group.
Also known as XP, Xeroderma Pigmentosum is a rare inherited disease affecting both males and females. It causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation from the sun and some artificial lighting sources. Undiagnosed and untreated, Xeroderma Pigmentosum can lead to the early onset of skin cancer and blindness. In addition, approximately 20% of people with Xeroderma Pigmentosum also develop progressive neurological disease.
The Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life for people with XP and other diagnosed UV light conditions. The Xeroderma Pigmentosum Family support group strives to create awareness and educate the public about XP, as well as to raise funds to promote research, create collaborations with international XP partner organizations, and provide family grants for UV protective equipment and travel assistance for attending the annual XP national convention.